Message from Julia, re the next RTD Patient Community Meeting & Happy Hour
It is time for us to start our Happy Hour meetings again. I wrote to you last month with a recap of RTD news. Since then, a lot has happened – we had a very moving and fun National Red Trouser Day, we have managed to raise much needed funds despite lockdown and we have joined the PREVAIL project, for which we will be funding some videoing – this project ticks the boxes for RTD whose objectives are to put the patient at the centre and improve the whole treatment path, in particular early diagnosis.
In my last email, I gave you the very sad news of Andy Gillham passing away. We know that Andy would be applauding our involvement in PREVAIL – if this pathway had been in place, who knows, we may still have Andy and many others amongst us. This project has gained added poignancy because of the number of cancer patients falling behind in their treatment or presenting with much more advanced cancer due to the Covid Crisis. Our Happy Hours are very much about the patient at the centre – so please join us to learn about ground-breaking work, to give us your own news, ask any questions you have, and contribute to our thinking at RTD, so that we represent you as we look for our next portfolio of projects to fund.
On the 4th November, we will be joined by Professor Gina Brown, who leads the PREVAIL project, and we hope to have Drs Irene Chong and Aishani Sachdeva with us too.
Our agenda and joining instructions are, as always:
We will be meeting will be from 6.00pm to 7.00pm, with lines opening from 5.45pm, with our normal agenda, of a maximum of 10 minutes each to the first three items, so leaving a good half an hour for number 4 focused on patients:
- News of RTD funded research – where there is any to report since last time
- News update on practical patient matters, especially from our clinicians, in particular our clinical nurses
- Breaking news on any relevant research by the RMCH – where there is any to report since last time
- Patient discussion – any tips, useful experiences, initiatives, requests for help with anything
And of course, please let us know what you would like to hear about next time? Let us know and we will do our best to cover it.
Looking forward to seeing you all next week.
Best wishes,
Julia
